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Thank you to our guests, sponsors and vintners of A Rare Affair for Rare Diseases 2019, the EveryLife Foundation’s signature networking and wine-tasting event, kicking off the annual JP Morgan Health Care Conference.


Please check out our photos from the event on Facebook, and please “like” our page, so you can stay up-to-date on our events and activities.

Thanks to the generous support of our guests, sponsors and vintners, we will be able to provide more than 100 travel stipends to our rare disease advocates from around the country, so they may join us for Rare Disease Week on Capitol Hill.

These advocates will be able to tell their stories directly to their members of Congress and that’s how we affect policy change!

If you are interested in supporting our efforts in other ways throughout the year, please contact Carol Kennedy at ckennedy@everylifefoundation.org

See you next year!

Thank you to our 2019 sponsors.

Vintner’s Reserve

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retrophin-logo    

Private Reserve       

The EveryLife Foundation for Rare Diseases reserves the right to use any photograph and/or video taken at this sponsored event without the expressed written permission of the individuals captured within the photograph and/or video. The Foundation may use the photograph and/or video in publications or other media material it produces, uses or contracts to produce including but not limited to websites, brochures, social media, invitations, etc.

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